NHATS has two types of data available to researchers that require approval before files can be accessed: sensitive data and restricted data.
Sensitive data require additional protection beyond what is implemented for public use data. Access to these data requires information about the researcher requesting the data and agreement to observe restrictions on cell sizes in publications and presentations from these data.
Restricted data are data fields or data files that pose additional risks of identifying participants. Access to these data are restricted to qualifying researchers who fulfill the additional requirements for restricted data access.
The National Study of Caregiving (NSOC) is a study of caregivers to NHATS sample persons. NSOC I was conducted in 2011, NSOC II was conducted in 2015 and NSOC III in 2017. Each NSOC data release consists of three files:
NSOC III also includes Time Diary files.
The NHATS Sample Person (SP) Sensitive Demographic files contain month and year of birth, age in years, month and year of death, age in years at death (beginning in Round 2), types of cancer, race and primary race if more than one race reported for sample persons (at baseline interview), Hispanic subgroup for sample persons (at baseline interview), periods of service as a veteran (at Round 1 and Round 5), month a marriage ended, year or age that the sample person came to live in the USA (at baseline interview), month and year Social Security payments started (at Round 1 and Round 5).
The NHATS Other Person (OP) Sensitive Demographic files contain month and year of birth and age of spouse/partners, children, and household members. The Round 1 file also contains categorical age information for social network members.
The NHATS Round 7 Dried Blood Spot (DBS) Based Biomarkers file contains the results of four assays that were conducted to foster study of the biologic risk of disability progression. Variables related to eligibility and data collection also are included.
Download and read the document “Obtaining Sensitive Data from the National Health and Aging Trends Study” : CLICK HERE for the document
Complete and sign the required forms from Section IV of the document.
Submit the application forms electronically to email@example.com. Please use the subject heading: Sensitive Data Application
Each application for access to Sensitive data will be reviewed by the NHATS Data Confidentiality Committee. Once approval is granted, you will receive an approval notification email with instructions on how to access and download the sensitive data file(s) from the NHATS website.
Restricted data include information collected by NHATS, such as geographic data, and data linked to NHATS sample person, such as Medicare data.
Geographic Data: City, state, county, and census tract are available at each round for the NHATS Participant. Baseline geographic data also includes the city and state where the SP was living at the age of 15 and the country of birth if the SP was born outside of the United States. City and state of residence for spouse/partners, children, and household members are available at each round. A file linking the NHATS Sample Person’s residence to the Dartmouth Health Atlas’s Hospital Referral Region (HRR) also is available. Additionally, a file linking the NHATS Sample Person’s residence to Rural-Urban Continuum Codes (RUCC) has been created.
Medicare Data: For the 2011 baseline cohort and the 2015 replenishment cohort (2011 continuing sample and 2015 new sample) retrospective packages are available with both current and prior year files for Medicare claims and assessment files and Part D Event Files and Drug Characteristic Files. Annual files are available for the baseline cohort for 2012 through 2014. Annual files are available for the replenishment cohort starting with 2016.
Download and read the document “Obtaining Restricted Data from the National Health and Aging Trends Study” : CLICK HERE for the document
Complete and sign the required forms and documents from Section V of the document.
Submit the application forms electronically to firstname.lastname@example.org. Please use the subject heading: Restricted Data Application
Each application for access to Restricted data will be reviewed by the NHATS Data Confidentiality Committee. Once approval is granted, submit the Data Protection Plan and Research Plan to the Restricted Data Investigator’s Institutional Review Board/Human Subjects Review Committee.
Following IRB/Human Subjects approval at the Restricted Data Investigator’s institution, submit to NHATS the Certification of Human Subjects Review form, which documents certification of the Institutional Review Board/Human Subjects Review Committee and approval of the Data Protection Plan and Research Plan.
If the restricted data being requested are CMS data linked to NHATS, follow the procedures for both NHATS and CMS approval.